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Thread: The Court-Ordered Killing of Charlie Gard

  1. #1
    Burn it down Macduff's Avatar
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    The Court-Ordered Killing of Charlie Gard

    Any day now, they’ll kill Charlie Gard.

    Charlie Gard, born last August, suffers from an inherited disease called infantile onset encephalomyopathic mitochondrial DNA depletion syndrome, generally referred to as “MDDS.” The disease is extraordinarily rare: At present, there are only 16 known cases worldwide. Most patients who suffer from it die in early infancy. Charlie is unable to breathe unaided, suffers from seizures, and has severe brain damage.
    For ten months, Charlie has been living in the intensive-care unit at Great Ormond Street Hospital in London. In March, his doctors decided that there was nothing more they could do for him, and they recommended that his parents, Connie Yates and Chris Gard, withdraw his ventilator. They refused, on the grounds that an untried experimental treatment was available in the United States. The hospital, in accordance with British law, applied to the courts to forestall further treatment. In April, the High Court found for the doctors and against the parents. In May, the Court of Appeal upheld the initial decision. In early June, the Supreme Court agreed. And this week, the European Court of Human Rights — the last court of jurisdiction — refused to intervene. Charlie’s parents have raised enough money from private donations to fund the experimental treatment, but the court decision prohibits his removal to the U.S. Whenever they see fit to do so, the doctors at Great Ormond Street Hospital can now remove Charlie’s life support.

    According to the Honourable Mr. Justice Nicholas Francis of the High Court’s Family Division, who authored the decision subsequently upheld by the higher courts, death is “in Charlie’s best interests.” There was no “scientific basis” for believing that Charlie would respond positively to the experimental American treatment; meanwhile, there is “unanimity among the experts from whom I have heard that nucleoside therapy cannot reverse structural brain damage.” “If,” wrote Justice Francis, “Charlie’s damaged brain function cannot be improved, as all agree, then how can he be any better off than he is now?” It was “with a heavy heart,” the judge said, that he sided with the doctors. Charlie should be permitted “to die with dignity.” In conclusion, Justice Francis praised the parents he had just overruled: “Most importantly of all, I want to thank Charlie’s parents for their brave and dignified campaign on his behalf, but more than anything to pay tribute to their absolute dedication to their wonderful boy, from the day that he was born.”

    So it was that successive courts in the United Kingdom and in Europe simultaneously found that Connie Yates and Chris Gard had devoted themselves unhesitatingly to their son’s welfare for ten months, and also that Yates and Gard could not be trusted to act in their son’s best interests.
    Read more at: Charlie Gard Court-Ordered Killing Defies Parents? Wishes | National Review
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  2. #2
    Chaos in fourteen lines Minotaur's Avatar
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    There is a line between being humane and inhumane and loved ones can't always accept the line. What point in suffering is too much suffering just to make loved ones feel better. I don't know the answer but I do know I could never allow my child to suffer because I am so focused on keeping him or her breathing for more suffering days. Keep in mind I would die for my children. It takes all of our strength to let go and is the hardest choice a parent can make. There is no good or bad in this decision, just suffering no matter what they do.
    Thanks from RNG, jacobfitcher, Friday13 and 6 others

  3. #3
    Moderator HCProf's Avatar
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    These decisions are better if all parties agree. Ethics Committees are used in the US to make these decisions and help the loved ones let go. I hope this poor child's parents find peace in the upcoming days. One thing that could have happened to help the parents accept, a Doctor from the US could have gone to the UK to administer treatment or consult on the case, if for anything science and it could have eliminated the "what if's" in the decision.
    Thanks from boontito, Minotaur and Madeline

  4. #4
    Burn it down Macduff's Avatar
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    Quote Originally Posted by Minotaur View Post
    There is a line between being humane and inhumane and loved ones can't always accept the line. What point in suffering is too much suffering just to make loved ones feel better. I don't know the answer but I do know I could never allow my child to suffer because I am so focused on keeping him or her breathing for more suffering days. Keep in mind I would die for my children. It takes all of our strength to let go and is the hardest choice a parent can make. There is no good or bad in this decision, just suffering no matter what they do.
    There's bad in the court removing this decision from competent and loving parents.

  5. #5
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    If the parents have secured the resources to transport the child to willing doctors in the US, it's none of the public's (government's) business.
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  6. #6
    Franken-Stein DemoKKKrats excalibur's Avatar
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    Compassionate liberal alert.

  7. #7
    Wrinkly Member Dangermouse's Avatar
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    Charlie is deaf, blind, and unresponsive to stimuli. He can't even breathe unaided. There's nothing compassionate about putting him through a plane trip for a whackadoodle "experimental treatment" which can do nothing for his condition except impoverish his parents.
    Thanks from RNG, Sassy, HCProf and 5 others

  8. #8
    Victim-oppressor Pimp Davocrat's Avatar
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    Quote Originally Posted by Dangermouse View Post
    Charlie is deaf, blind, and unresponsive to stimuli. He can't even breathe unaided. There's nothing compassionate about putting him through a plane trip for a whackadoodle "experimental treatment" which can do nothing for his condition except impoverish his parents.
    Stuff it, limey. We CARE about life in America! That's why we have the best healthcare ANYWHERE. Eh...provided you can pay for it.
    Thanks from Dangermouse and TennesseeRain

  9. #9
    Victim-oppressor Pimp Davocrat's Avatar
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    Suddenly Mac cares about what another country does about its healthcare policies. He's like Mother Teresa that way.

  10. #10
    Nuisance Factor Yeti 8 Jungle Swing Champion, YetiSports 4 - Albatross Overload Champion, YetiSports7 - Snowboard FreeRide Champion, Alu`s Revenge Champion boontito's Avatar
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    I don't envy the parents, the lawyers, the judges, the doctors, the hospital administrators, or Charlie in this situation. There simply is only pain coming from this for anyone involved.

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